Crohn's Disease Discussion Board

CrohnsQueen · Joined: 09 Nov 2006 Posts: 6 Location: London

My story so far...

Boxing day 2005, i'd had enough, i was 16 and was fed up of passing blood in my tools nd having to sit on pillows and smelling which i used to hide with bottles and bottles of perfume so i told my mum i was having stomach pains, my mum thought i was bulimic because i hadgone down to 6n1/2 stone and vomiting reguarly (after going to the toilet) so my mum thought i was sitting in there making myself sick. Got to the doctors and he sed im anarexic, my mum wasnt hapy so went back a week later and id lost 2 kilos in that time... still the doctor didnt care, so my mum has Crohns disease and i got a apt with her consultant in march, he rushed me straight into hospital, by this time i was down to 4n1/2 tone, i was so ill, he gave me blood trnfusions and loads of unpleasent camra tests and biopsies and was diagnosed with crohns, i was put on nil by mouth and pumped ull of medications, i had surgery to remove part of my intestine and to repair fistulas and fissures, 3 months later i was out of hospital, i still in pain but ive gone part to work PART TIME. My rohns is effectin my stomach, intestiones, ileum, large and small bowel, rectum and my mouth, i wake up in the night vomiting and needing the toilet about 7 times but im 500percent better than what i was im on medication and im getting there and i can live like this but my consultant still isnt happy as im still only 6stone, he wants me back in hospial but im happy and im fed up of being prodded and poked.
My mum has crohns and its brought me and he really close, shes my best friend and i love her to bits, shes having a stoma bag in next year i dont want her to suffer any more but i dont know how sh will cope with the bag, my dad is abslutely fantastic, he is so suportive but my brothers and sister dont give a toss..

Sorry bout the long pos, jus need to get it out

JennO · Joined: 20 Feb 2007 Posts: 12

Been feeling miserable lately, yet I am lucky I have not had to have surgery. I have ulcerations in the stomach, deudoneum(sp?), and most parts of the colon(no real small intestine involvement). I am on my second month of high dose prednisone...just lucky that I'm not in the hospital...Grateful to have a kind husband, father, mother, and support system. Grateful to be living in a place where I have access to medical care (millions are born without). I am grateful, I am thankful...Yet sometimes I just wish it would all go away, take the pain away...so tired...

suffering · Joined: 28 Sep 2007 Posts: 6

we all wish it could go away, not just the pain and the suffering but also others' eyes on us.. ! Sad

lilac_star_flower · Joined: 03 Nov 2006 Posts: 36 Location: scotland

totally agree with being fed up with the poking and prodding - sometimes i feel like i just landed in area 51 Rolling Eyes